Wednesday, Oct. 7, 2009

Well, yesterday we found out why you don't wake Brennen up from his nap for his 2:30 feed...whew! Brennen had been missing his 2:30 for several days now because he would always be sleeping from his nap. He would take a nice long nap at the day hospital, which I know he needs, but then have trouble falling asleep back at the RM House. So they asked me yesterday if wanted to let him sleep or wake him up...I said I would wake him up. BIG MISTAKE!!

He was crying, saying he was still tired, and had no interest in eating because he was mad. It was horrible...

When the feeding team heard him crying, Dr. Cuddy ran in to see what was going on because everything up to this point had gone rather smoothly. Nurse Barbara was wonderful with him..very patient and just waited out the crying and began talking very soft with him. She began asking him about his day and what he liked about preschool. Anything to distract him was the goal of their conversation.

Well, about 15-20 minutes later...Brennen started eating. Dr. Cuddy explained that we were going to rearrange the schedule so that he can nap during the afternoon and not have to worry about this feeding time. We added an additional one in the morning. Since Brennen's volume of food is not very much at this time, it won't be a problem to move them a little closer together. With his new schedule, starting today, he will have his second feeding right after preschool. Which will be nice because he might be hungry after he plays.

She explained that if we had taken him out of the feeding chair, it could have had negative effects on the rest of the feedings. (I cry..I get out of eating) As much as I wanted to get him out of the chair, I knew she was right. It is all about having control over situations and consistancy with scheduling.

Lesson learned...Don't wake a sleeping Brennen :)

I will try and post more today to let you know how the new schedule goes....